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Down Syndrome

Image of a child in the pool

The primary NIH organization for research on Down Syndrome is the National Institute of Child Health and Human Development
Additional Information
Kids' Health Is about children's health and development written for three distinct audiences, It includes more than 5,000 doctor-reviewed, up-to-date, and easy-to-read articles, interactive features, games, and video.


Down Syndrome Research Foundation (DSRF)
Provides relevant, reliable and timely information on the latest research and educational programs for people of all ages with Down syndrome and other cognitive disabilities.

National Association for Down Syndrome (NADS)
NADS offers information, support, and advocacy. 

National Down Syndrome Congress (NDSC)
NDSC promotes the interests of people with Down syndrome and their families through advocacy, public awareness, and information dissemination. The current issue of the NDSC newsletter is online.
Aavailable in Spanish.

National Down Syndrome Society (NDSS)
NDSS is one of the largest non-government supporters of Down syndrome research in the U.S. Over 350 affiliates are local parent support groups and other organizations that work on behalf of people with Down syndrome and their families.