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Down Syndrome

Image of a child in the pool

The primary NIH organization for research on Down Syndrome is the National Institute of Child Health and Human Development
Additional Information
Kids' Health Is about children's health and development written for three distinct audiences, It includes more than 5,000 doctor-reviewed, up-to-date, and easy-to-read articles, interactive features, games, and video.


Illinois Resources

Central Illinois Down Syndrome Organization (CIDSO)
CIDSO serves Bloomington, Normal, and the greater McLean county area. The monthly newsletters from 2007 to current are available online.

Disability & Rehabilitation
Illinois Department Human Services
This site focuses on jobs, independent living, education, disability benefits, child services, and advocacy & customer service. There is also an Office Locator tool to find offices of a specific type and/or county.

Down Syndrome Development Council (DDC)
The DDC, serving the Lake County area, is a volunteer support group promoting a greater acceptance and understanding of Down Syndrome. Meetings are held twice a month at various locations.

FINDS - Family Ideas Network for Down Syndrome
FINDS is a McHenry County volunteer organization run entirely by parents. Its mission is to bring new opportunities to families that have children with Down Syndrome through bi-monthly newsletters, social events, educational services, and family support.

Gigi's Playhouse - Down Syndrome Awareness Centers
What started as a local Playhouse in a suburb of Chicago has turned into an international phenomenon. GiGi's Playhouses are free educational centers that provide resources, specialized teaching, and support. Illinois locations are in Chicago, Aurora, McHenry, Rockford, and Hoffman Estates.

Illinois STARnet
STARnet is operated through a grant from the Illinois State Board of Education. It provides training, consultation, and resources to the early childhood community in Illinois. Staff is available to provide on-site or telephone assistance and support.

March of Dimes Birth Defects Foundation
The March of Dimes Mission is improving the health of babies by preventing birth defects, premature birth and infant mortality, through research, community services, education and advocacy. The Illinois Chapter has 7 divisions serving various regions of the state.
Available in Spanish.

National Association for Down Syndrome (NADS)
Serving mainly the Chicago metropolitan area, NADS is the oldest Down Syndrome organization in the country. NADS provide support through its Parent Support Program, Mentoring Program, Work Experience Program, and other individualized services.